The parents of Charlie Gard, the critically ill 11-month-old whose case has become a global cause celebre, attracting interventions from Donald Trump and the Pope, were given fresh hope on Monday when a court in London gave them two days to present new evidence as to why their son should receive experimental treatment for his rare genetic condition.
Chris Gard and Connie Yates were told by judge Nicholas Francis to present fresh evidence by Wednesday afternoon to the High Court, with a final decision to be made at a hearing on Thursday. Their son is being treated at Great Ormond Street Hospital in London, but the institution wants to turn off his life support systems because they feel he is untreatable.
During a day of high, raw emotion, the boy’s parents wept in court and shouted at legal representatives of the hospital. "When are you going to start telling the truth?" Mr Gard demanded of a barrister. They also attempted to have another judge hear the case, a move that Mr Francis rejected, saying "I did my job… I will continue to do my job."
But the judge said that there had to be "new and powerful" evidence to convince him that earlier rulings barring the family from travelling abroad for treatment could be overturned. "There is not a person alive who would not want to save Charlie," Mr Francis said. "If there is new evidence I will hear it."
Previous rulings from British and European courts have said that Charlie could not receive the treatment for mitochondrial depletion syndrome, a condition that has left him with brain damage and unable to breathe unaided. Great Ormond Street Hospital applied for the court hearing because of "new evidence relating to potential treatment for his condition".
Researchers working at a children's hospital run by the Vatican had provided Great Ormond Street with more evidence regarding an experimental therapy, which hospitals in Rome and the US have offered to provide for Charlie. British doctors still believe that the treatment will not work and will only prolong the baby's suffering.
Three tips from La Perle's performers
1 The kind of water athletes drink is important. Gwilym Hooson, a 28-year-old British performer who is currently recovering from knee surgery, found that out when the company was still in Studio City, training for 12 hours a day. “The physio team was like: ‘Why is everyone getting cramps?’ And then they realised we had to add salt and sugar to the water,” he says.
2 A little chocolate is a good thing. “It’s emergency energy,” says Craig Paul Smith, La Perle’s head coach and former Cirque du Soleil performer, gesturing to an almost-empty open box of mini chocolate bars on his desk backstage.
3 Take chances, says Young, who has worked all over the world, including most recently at Dragone’s show in China. “Every time we go out of our comfort zone, we learn a lot about ourselves,” she says.
Living in...
This article is part of a guide on where to live in the UAE. Our reporters will profile some of the country’s most desirable districts, provide an estimate of rental prices and introduce you to some of the residents who call each area home.
Richard Jewell
Director: Clint Eastwood
Stars: Paul Walter Hauser, Sam Rockwell, Brandon Stanley
Two-and-a-half out of five stars
Indika
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Company%20Profile
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Manikarnika: The Queen of Jhansi
Director: Kangana Ranaut, Krish Jagarlamudi
Producer: Zee Studios, Kamal Jain
Cast: Kangana Ranaut, Ankita Lokhande, Danny Denzongpa, Atul Kulkarni
Rating: 2.5/5
What drives subscription retailing?
Once the domain of newspaper home deliveries, subscription model retailing has combined with e-commerce to permeate myriad products and services.
The concept has grown tremendously around the world and is forecast to thrive further, according to UnivDatos Market Insights’ report on recent and predicted trends in the sector.
The global subscription e-commerce market was valued at $13.2 billion (Dh48.5bn) in 2018. It is forecast to touch $478.2bn in 2025, and include the entertainment, fitness, food, cosmetics, baby care and fashion sectors.
The report says subscription-based services currently constitute “a small trend within e-commerce”. The US hosts almost 70 per cent of recurring plan firms, including leaders Dollar Shave Club, Hello Fresh and Netflix. Walmart and Sephora are among longer established retailers entering the space.
UnivDatos cites younger and affluent urbanites as prime subscription targets, with women currently the largest share of end-users.
That’s expected to remain unchanged until 2025, when women will represent a $246.6bn market share, owing to increasing numbers of start-ups targeting women.
Personal care and beauty occupy the largest chunk of the worldwide subscription e-commerce market, with changing lifestyles, work schedules, customisation and convenience among the chief future drivers.
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Killing of Qassem Suleimani
COMPANY PROFILE
Name: Rain Management
Year started: 2017
Based: Bahrain
Employees: 100-120
Amount raised: $2.5m from BitMex Ventures and Blockwater. Another $6m raised from MEVP, Coinbase, Vision Ventures, CMT, Jimco and DIFC Fintech Fund
More coverage from the Future Forum
Killing of Qassem Suleimani
Sholto Byrnes on Myanmar politics
The%20specs
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MATCH INFO
Real Madrid 2 (Benzema 13', Kroos 28')
Barcelona 1 (Mingueza 60')
Red card: Casemiro (Real Madrid)
