Life-saving Abu Dhabi health scheme supports newborn babies with heart defects


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Parents caring for newborn babies awaiting operations for heart defects are receiving increased support under an Abu Dhabi healthcare initiative that aims to boost survival rates.

Abu Dhabi's public health provider, Seha, began an interstage monitoring programme dedicated to babies with serious abnormalities, such as when only one side of a child's heart is functioning.

Such conditions typically require open-heart surgery in the first few days of life, followed by a second heart operation after six months.

In this crucial time between operations, known as the interstage period, about 20 per cent of babies die.

Public healthcare provider Seha has introduced a home monitoring programme for infants who have operations for heart defects. Seha
Public healthcare provider Seha has introduced a home monitoring programme for infants who have operations for heart defects. Seha

It is a stark statistic that a group of cardiac intensive care physicians, nurses and administrative employees from Seha-affiliated Sheikh Khalifa Medical City seek to address by providing parents with comprehensive monitoring and medical counselling during the most significant of times in their child's life.

"Newborns face a higher risk of death during the interstage period, due to the increased toll a simple virus or other infections can have on an abnormally developed heart," said Dr Anwar Sallam, chief medical officer at Seha.

"With parents not knowing what to watch out for, and how rapidly a newborn with a heart abnormality’s health can deteriorate, the SKMC paediatric cardiac surgical department have taken the lead in introducing a programme that enables the continuous monitoring and care of infants at home during the waiting period.”

The paediatric congenital cardiac team at the hospital look after 50 to 60 newborns with these conditions every year.

The IMP team monitors the infant’s well-being from the time they complete their first open-heart surgery to the day they are readmitted for their second procedure.

The team then establishes regular contact with the family through either daily or weekly telemedicine consultations.

If problems are identified, families are given instructions on how to proceed, and if the situation becomes critical, arrangements are made for referral to hospital and readmission.

"Of the approximately 350 corrective heart surgeries we perform on children each year, around 60 infants require a follow-up open-heart procedure after around six months," said Dr Victoria Sheward, consultant paediatric cardiac intensivist at the hospital.

"By introducing the interstage monitoring programme, we are letting parents know they are not alone during this journey and are providing them with the support they need to keep their newborns safe, healthy and alive as they wait for their second operation.”

The programme was established by the hospital in July last year and currently has close to 30 infants enrolled for home monitoring.

To date, three of them were identified as nearing critical condition because of their declining health, with urgent intervention arranged through the programme.

Little Rayan was born in June 2020 with a severe heart abnormality. Seha
Little Rayan was born in June 2020 with a severe heart abnormality. Seha

A mother's gratitude after life-saving intervention 

Rayan was born in June 2020 with a severe heart abnormality, in which the whole of the right side of his heart had not developed properly.

His condition meant that he needed life-saving open-heart surgery within the first few weeks of life, which was carried out at SKMC in July.

After a prolonged stay in the paediatric cardiac intensive care unit, Rayan returned home at the end of the month.

“Rayan is my first baby. SKMC doctors diagnosed a congenital heart defect, so he underwent an initial open-heart surgery in his first few days of life during Covid-19, followed by a second heart surgery on December 15 after six months," said his mother, Aya.

"It was one of the toughest times of my life, as my parents were away from me in Syria, but the SKMC team was very supportive and took care of my baby by making continuous follow-up calls.”

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UAE currency: the story behind the money in your pockets
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Super Bowl LIII schedule

What Super Bowl LIII

Who is playing New England Patriots v Los Angeles Rams

Where Mercedes-Benz Stadium in Atlanta, United States

When Sunday (start time is 3.30am on Monday UAE time)

 

Dubai World Cup Carnival card:

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Favourite holiday destination: Turkey - because the government look after animals so well there.

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Ruwais timeline

1971 Abu Dhabi National Oil Company established

1980 Ruwais Housing Complex built, located 10 kilometres away from industrial plants

1982 120,000 bpd capacity Ruwais refinery complex officially inaugurated by the founder of the UAE Sheikh Zayed

1984 Second phase of Ruwais Housing Complex built. Today the 7,000-unit complex houses some 24,000 people.  

1985 The refinery is expanded with the commissioning of a 27,000 b/d hydro cracker complex

2009 Plans announced to build $1.2 billion fertilizer plant in Ruwais, producing urea

2010 Adnoc awards $10bn contracts for expansion of Ruwais refinery, to double capacity from 415,000 bpd

2014 Ruwais 261-outlet shopping mall opens

2014 Production starts at newly expanded Ruwais refinery, providing jet fuel and diesel and allowing the UAE to be self-sufficient for petrol supplies

2014 Etihad Rail begins transportation of sulphur from Shah and Habshan to Ruwais for export

2017 Aldar Academies to operate Adnoc’s schools including in Ruwais from September. Eight schools operate in total within the housing complex.

2018 Adnoc announces plans to invest $3.1 billion on upgrading its Ruwais refinery 

2018 NMC Healthcare selected to manage operations of Ruwais Hospital

2018 Adnoc announces new downstream strategy at event in Abu Dhabi on May 13

Source: The National

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25 under -  Antoine Rozner (FRA)

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Uber is ridiculously cheap and, as Diego Saez discovered, mush safer. A 45-minute taxi from Pulova airport to Saint Petersburg’s Nevsky Prospect can cost as little as 500 roubles (Dh30).

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Uber policy in Russia is that they can start the fare as soon as they arrive at the pick-up point — and oftentimes they start it even before arriving, or worse never arrive yet charge you anyway.

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The walk from Krestovsky Ostrov metro station to Saint Petersburg Arena on a rainy day makes you wonder why some of the $1.7 billion was not spent on a weather-protected walkway.

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