Katrina Thornley, the director of operations and patient support at Emirates Arthritis Foundation, says the condition can isolate sufferers.
Katrina Thornley, the director of operations and patient support at Emirates Arthritis Foundation, says the condition can isolate sufferers.

Arthritis sufferers told they're not alone



ABU DHABI // Arthritis need not be a life sentence, especially if caught early, sufferers will be told today as part of an awareness campaign.

Emirates Arthritis Foundation (EAF) said it was important to let people living with the illness know that they were not alone.

"We help to support those patients who suffer with the disease here," said Katrina Thornley, the director of operations and patient support at the EAF. "It's important that people know there is someone out there listening."

A programme scheduled for today, to mark World Arthritis Day, will include seminars on how to spot symptoms of the disease and quick methods of pain relief that sufferers can teach themselves.

Mohammed Al Hashimi, the chairman of the EAF, said residents, especially Emiratis, did not recognise that early treatment of the disease was crucial.

"They don't believe it's a sickness that can lead to disability," said Mr Al Hashimi, an Emirati who received a diagnosis of rheumatoid arthritis 11 years ago.

Spreading awareness, he said, was a big challenge. "I've even been talking to my son and people just underestimate the disease. They think it will be a bit difficult to get up - they think that's it."

With media attention often focused on cancer and diabetes, people tended to disregard the implications of living with swollen and painful joints, he said.

If left undiagnosed, rheumatoid arthritis can lead to disability and deformity.

Arthritis, the name given to anything that affects the joints, is the collective term for more than 100 different conditions. Three of the most common are osteoarthritis, rheumatoid arthritis and juvenile rheumatoid arthritis.

Most commonly the result of an immune system disorder, other factors could be involved, said Dr Humeira Badsha, the vice chairwoman of the EAF. But, she added, some people were just predisposed to developing the disease.

"You can have arthritis even if no one in your family has it. A gene can be passed on for generations without being manifested."

The disease affects about 20 per cent of the population in the UAE. And while osteoarthritis was linked to obesity and diabetes, both of which were prevalent in the country, the number did not vary greatly from the worldwide average, Dr Badsha said.

A study she carried out in 2005 found that the disease was being diagnosed in residents 14 months after they experienced symptoms, which included joint pain and swelling. A similar study carried out last year revealed that the delay had dropped to seven months.

But any delay in diagnosis could lead to more severe problems, she said.

Another problem also being tackled by the EAF was the lack of medical insurance for some expensive medications, Mrs Thornley said.

"We're very lucky now because of a new medication … that came out in 2000. It can't cure the disease -unfortunately there is no cure yet - but it puts it into remission. It tells the arthritis to back off."

But the medication, while available in the country, costs Dh70,000 a year and most insurance companies do not cover it.

Supporting patients at an early stage and preventing severe disability would save insurers money in the long run, Mrs Thornley said.

"Ten years down the line, these insurers won't have to pay for hip replacements, or knee replacements."

But Dr Badsha stressed not all treatments were expensive.

"Usually we use disease modifying medicines, so the first line of treatments are medicines which are quite inexpensive. They cost less than Dh100 a month."

Should those medicines fail to have a positive effect, then the patient may have to consider alternative, and perhaps pricier, treatment, she added.

Event organisers also hoped to dispel popular misconceptions about arthritis.

"People think it's an old people's disease, that it is infectious, and that there's nothing that can be done about it," Mrs Thornley said.

"They say that I should get bed rest. [I say], if you don't use it, you lose it."

@ For more on HEALTH, visit thenational.ae/topics

At a glance

Global events: Much of the UK’s economic woes were blamed on “increased global uncertainty”, which can be interpreted as the economic impact of the Ukraine war and the uncertainty over Donald Trump’s tariffs.

 

Growth forecasts: Cut for 2025 from 2 per cent to 1 per cent. The OBR watchdog also estimated inflation will average 3.2 per cent this year

 

Welfare: Universal credit health element cut by 50 per cent and frozen for new claimants, building on cuts to the disability and incapacity bill set out earlier this month

 

Spending cuts: Overall day-to day-spending across government cut by £6.1bn in 2029-30 

 

Tax evasion: Steps to crack down on tax evasion to raise “£6.5bn per year” for the public purse

 

Defence: New high-tech weaponry, upgrading HM Naval Base in Portsmouth

 

Housing: Housebuilding to reach its highest in 40 years, with planning reforms helping generate an extra £3.4bn for public finances

If you go

The flights
There are various ways of getting to the southern Serengeti in Tanzania from the UAE. The exact route and airstrip depends on your overall trip itinerary and which camp you’re staying at. 
Flydubai flies direct from Dubai to Kilimanjaro International Airport from Dh1,350 return, including taxes; this can be followed by a short flight from Kilimanjaro to the Serengeti with Coastal Aviation from about US$700 (Dh2,500) return, including taxes. Kenya Airways, Emirates and Etihad offer flights via Nairobi or Dar es Salaam.   

The smuggler

Eldarir had arrived at JFK in January 2020 with three suitcases, containing goods he valued at $300, when he was directed to a search area.
Officers found 41 gold artefacts among the bags, including amulets from a funerary set which prepared the deceased for the afterlife.
Also found was a cartouche of a Ptolemaic king on a relief that was originally part of a royal building or temple. 
The largest single group of items found in Eldarir’s cases were 400 shabtis, or figurines.

Khouli conviction

Khouli smuggled items into the US by making false declarations to customs about the country of origin and value of the items.
According to Immigration and Customs Enforcement, he provided “false provenances which stated that [two] Egyptian antiquities were part of a collection assembled by Khouli's father in Israel in the 1960s” when in fact “Khouli acquired the Egyptian antiquities from other dealers”.
He was sentenced to one year of probation, six months of home confinement and 200 hours of community service in 2012 after admitting buying and smuggling Egyptian antiquities, including coffins, funerary boats and limestone figures.

For sale

A number of other items said to come from the collection of Ezeldeen Taha Eldarir are currently or recently for sale.
Their provenance is described in near identical terms as the British Museum shabti: bought from Salahaddin Sirmali, "authenticated and appraised" by Hossen Rashed, then imported to the US in 1948.

- An Egyptian Mummy mask dating from 700BC-30BC, is on offer for £11,807 ($15,275) online by a seller in Mexico

- A coffin lid dating back to 664BC-332BC was offered for sale by a Colorado-based art dealer, with a starting price of $65,000

- A shabti that was on sale through a Chicago-based coin dealer, dating from 1567BC-1085BC, is up for $1,950