Prince Harry is one of the two per cent of the global population who risk prejudice from "gingerism", just one of the types of discrimination based on our genetic codes / AFP
Prince Harry is one of the two per cent of the global population who risk prejudice from "gingerism", just one of the types of discrimination based on our genetic codes / AFP

Genetic data can lead to huge scientific advances but the advantages need to be weighed up against relinquishing privacy



Prince Harry, one of the world's most famous redheads, has been prominent in the world's media for his good news this week – but as a little aside to those headlines about his engagement to Meghan Markle, it is worth observing he is one of the two per cent of the global population with similar colouring who too often suffer from "gingerism", the mockery and discrimination faced by those with his hair colour. Prejudice is built on assumptions about being different, a so-called deviation from the supposed norm.

The online dating site Match.com got into trouble for referring to red hair and freckles as "imperfections". Campaigns have been run to change attitudes. One initiative has even ensured the introduction of a red-haired emoji.

All of this social activism to address historic and damaging beliefs about redheads might well be undermined. Recent genetic studies claim to show that people with red hair experience pain differently from everyone else. Or, to put it simply, they are different.

Each human being has a unique genetic code and there is something thrilling about the idea of identifying and decoding the inner mystery of what makes you who you are. But with the excitement of unlocking the keys to the human condition, we should be striking a note of caution and ensuring we put in place structures of moral accountability and governance to protect our most definitive and intimate datasets.

____________________

Read more from Opinion:

____________________

The horrors carried out in the name of eugenics are not as far in the past as we'd like to think. While appalling Nazi experiments rightly are treated with abhorrence, the negativity towards race and disability persists.

Studies by bodies such as the Proceedings of the National Academy of Sciences in the US show that even today, black patients sometimes suffer from racial bias and are given less pain relief than white patients.

It’s undoubtedly true that unlocking genetic codes and getting glimpses of how our inherited gene pool might shape our lives is a powerful thing. In particular, when it comes to our health, it can help us take preemptive measures.

In 2013 Angelina Jolie underwent a double mastectomy after finding that she was a carrier of a faulty BRCA1 gene, which predisposes to breast cancer. She also had a family history of breast and ovarian cancer. Her public announcement of her genetic status and subsequent operation prompted an upturn in women being tested for the gene.

As with any large data source, genetic profiling is quickly turning into an opportunity for marketing and lifestyle. Along with health services, they can allegedly tell you what foods to eat to help you lose weight depending on your genes and even offer to help tailor training schedules to improve your football skills.

In doing so, however, we are handing over our most intimate data – our genetic information. This is despite the fact that we get edgy about records being kept of our fingerprints or our internet search histories being accessed by authorities. But like the handing over of our personal data via social media, we need to be aware that we are giving away our data.

Are we giving that information to businesses, governments and even other individuals who may or may not be scrupulous? Benefits such as finding family members, or taking precautions against health risks need to be weighed up against relinquishing privacy.

Of course, in the era of big data and social media, does privacy even matter anymore? Do we even care? However, while we might be willing to give up our own information, genetic identification is so intricate that, coupled with the data we publish about ourselves, we might well be giving away the privacy of others around us who have no say in the matter.

There are also huge practical implications. Healthcare companies will exclude conditions that clients have already suffered. They could enforce genetic testing and exclude anything that might even have a predisposition.

Our deeply held social and moral beliefs can come into conflict with science and data. We may well believe that health should be preserved for all and that our genetic inheritance should not exclude us from basic humanity. After all, what kind of society would we be if we cast people aside due to their genetic codes?

Genetics offers hugely exciting possibilities. But we must be vigilant that we don't give wings to the worst of human behaviour disguised as progress.

Shelina Janmohamed is the author of Generation M: Young Muslims Changing the World

UAE jiu-jitsu squad

Men: Hamad Nawad and Khalid Al Balushi (56kg), Omar Al Fadhli and Saeed Al Mazroui (62kg), Taleb Al Kirbi and Humaid Al Kaabi (69kg), Mohammed Al Qubaisi and Saud Al Hammadi (70kg), Khalfan Belhol and Mohammad Haitham Radhi (85kg), Faisal Al Ketbi and Zayed Al Kaabi (94kg)

Women: Wadima Al Yafei and Mahra Al Hanaei (49kg), Bashayer Al Matrooshi and Hessa Al Shamsi (62kg)

The White Lotus: Season three

Creator: Mike White

Starring: Walton Goggins, Jason Isaacs, Natasha Rothwell

Rating: 4.5/5

Results

Stage 7:

1. Caleb Ewan (AUS) Lotto Soudal - 3:18:29

2. Sam Bennett (IRL) Deceuninck-QuickStep - same time

3. Phil Bauhaus (GER) Bahrain Victorious

4. Michael Morkov (DEN) Deceuninck-QuickStep

5. Cees Bol (NED) Team DSM

General Classification:

1. Tadej Pogacar (SLO) UAE Team Emirates - 24:00:28

2. Adam Yates (GBR) Ineos Grenadiers - 0:00:35

3. Joao Almeida (POR) Deceuninck-QuickStep - 0:01:02

4. Chris Harper (AUS) Jumbo-Visma - 0:01:42

5. Neilson Powless (USA) EF Education-Nippo - 0:01:45

Key facilities
  • Olympic-size swimming pool with a split bulkhead for multi-use configurations, including water polo and 50m/25m training lanes
  • Premier League-standard football pitch
  • 400m Olympic running track
  • NBA-spec basketball court with auditorium
  • 600-seat auditorium
  • Spaces for historical and cultural exploration
  • An elevated football field that doubles as a helipad
  • Specialist robotics and science laboratories
  • AR and VR-enabled learning centres
  • Disruption Lab and Research Centre for developing entrepreneurial skills
Manchester United v Club America

When: Thursday, 9pm Arizona time (Friday UAE, 8am)

Tips%20for%20travelling%20while%20needing%20dialysis
%3Cul%3E%0A%3Cli%3EInform%20your%20doctor%20about%20your%20plans.%C2%A0%3C%2Fli%3E%0A%3Cli%3EAsk%20about%20your%20treatment%20so%20you%20know%20how%20it%20works.%C2%A0%3C%2Fli%3E%0A%3Cli%3EPay%20attention%20to%20your%20health%20if%20you%20travel%20to%20a%20hot%20destination.%C2%A0%3C%2Fli%3E%0A%3Cli%3EPlan%20your%20trip%20well.%C2%A0%3C%2Fli%3E%0A%3C%2Ful%3E%0A
Specs

Price, base: Dhs850,000
Engine: 3.9-litre twin-turbo V8
Transmission: Seven-speed automatic
Power: 591bhp @ 7,500rpm
Torque: 760Nm @ 3,000rpm
Fuel economy, combined: 11.3L / 100km

The specs

Engine: Four electric motors, one at each wheel

Power: 579hp

Torque: 859Nm

Transmission: Single-speed automatic

Price: From Dh825,900

On sale: Now

Real estate tokenisation project

Dubai launched the pilot phase of its real estate tokenisation project last month.

The initiative focuses on converting real estate assets into digital tokens recorded on blockchain technology and helps in streamlining the process of buying, selling and investing, the Dubai Land Department said.

Dubai’s real estate tokenisation market is projected to reach Dh60 billion ($16.33 billion) by 2033, representing 7 per cent of the emirate’s total property transactions, according to the DLD.

A MINECRAFT MOVIE

Director: Jared Hess

Starring: Jack Black, Jennifer Coolidge, Jason Momoa

Rating: 3/5

Specs

Engine: Dual-motor all-wheel-drive electric

Range: Up to 610km

Power: 905hp

Torque: 985Nm

Price: From Dh439,000

Available: Now

Sweet%20Tooth
%3Cp%3E%3Cstrong%3ECreator%3A%20%3C%2Fstrong%3EJim%20Mickle%3Cbr%3E%3Cstrong%3EStarring%3A%20%3C%2Fstrong%3EChristian%20Convery%2C%20Nonso%20Anozie%2C%20Adeel%20Akhtar%2C%20Stefania%20LaVie%20Owen%3Cbr%3E%3Cstrong%3ERating%3A%20%3C%2Fstrong%3E2.5%2F5%3C%2Fp%3E%0A
COMPANY%20PROFILE
%3Cp%3E%3Cstrong%3EName%3A%20%3C%2Fstrong%3EShaffra%3Cbr%3E%3Cstrong%3EStarted%3A%20%3C%2Fstrong%3E2023%3Cbr%3E%3Cstrong%3EBased%3A%20%3C%2Fstrong%3EDIFC%20Innovation%20Hub%3Cbr%3E%3Cstrong%3ESector%3A%20%3C%2Fstrong%3Emetaverse-as-a-Service%20(MaaS)%3Cbr%3E%3Cstrong%3EInvestment%3A%20%3C%2Fstrong%3Ecurrently%20closing%20%241.5%20million%20seed%20round%3Cbr%3E%3Cstrong%3EInvestment%20stage%3A%20%3C%2Fstrong%3Epre-seed%3Cbr%3E%3Cstrong%3EInvestors%3A%20%3C%2Fstrong%3EFlat6Labs%20Abu%20Dhabi%20and%20different%20PCs%20and%20angel%20investors%20from%20Saudi%20Arabia%3Cbr%3E%3Cstrong%3ENumber%20of%20staff%3A%20%3C%2Fstrong%3Enine%3C%2Fp%3E%0A
TOURNAMENT INFO

Women’s World Twenty20 Qualifier

Jul 3- 14, in the Netherlands
The top two teams will qualify to play at the World T20 in the West Indies in November

UAE squad
Humaira Tasneem (captain), Chamani Seneviratne, Subha Srinivasan, Neha Sharma, Kavisha Kumari, Judit Cleetus, Chaya Mughal, Roopa Nagraj, Heena Hotchandani, Namita D’Souza, Ishani Senevirathne, Esha Oza, Nisha Ali, Udeni Kuruppuarachchi

NO OTHER LAND

Director: Basel Adra, Yuval Abraham, Rachel Szor, Hamdan Ballal

Stars: Basel Adra, Yuval Abraham

Rating: 3.5/5

The National's picks

4.35pm: Tilal Al Khalediah
5.10pm: Continous
5.45pm: Raging Torrent
6.20pm: West Acre
7pm: Flood Zone
7.40pm: Straight No Chaser
8.15pm: Romantic Warrior
8.50pm: Calandogan
9.30pm: Forever Young

The smuggler

Eldarir had arrived at JFK in January 2020 with three suitcases, containing goods he valued at $300, when he was directed to a search area.
Officers found 41 gold artefacts among the bags, including amulets from a funerary set which prepared the deceased for the afterlife.
Also found was a cartouche of a Ptolemaic king on a relief that was originally part of a royal building or temple. 
The largest single group of items found in Eldarir’s cases were 400 shabtis, or figurines.

Khouli conviction

Khouli smuggled items into the US by making false declarations to customs about the country of origin and value of the items.
According to Immigration and Customs Enforcement, he provided “false provenances which stated that [two] Egyptian antiquities were part of a collection assembled by Khouli's father in Israel in the 1960s” when in fact “Khouli acquired the Egyptian antiquities from other dealers”.
He was sentenced to one year of probation, six months of home confinement and 200 hours of community service in 2012 after admitting buying and smuggling Egyptian antiquities, including coffins, funerary boats and limestone figures.

For sale

A number of other items said to come from the collection of Ezeldeen Taha Eldarir are currently or recently for sale.
Their provenance is described in near identical terms as the British Museum shabti: bought from Salahaddin Sirmali, "authenticated and appraised" by Hossen Rashed, then imported to the US in 1948.

- An Egyptian Mummy mask dating from 700BC-30BC, is on offer for £11,807 ($15,275) online by a seller in Mexico

- A coffin lid dating back to 664BC-332BC was offered for sale by a Colorado-based art dealer, with a starting price of $65,000

- A shabti that was on sale through a Chicago-based coin dealer, dating from 1567BC-1085BC, is up for $1,950

Jigra
Director: Vasan Bala
Starring: Alia Bhatt, Vedang Raina, Manoj Pahwa, Harsh Singh
Rated: 3.5/5