Falling ill with a rare immune condition may have led to a young boy from Gaza saving the lives of his entire family, as it resulted in their evacuation to the UAE.
Oday Al Jedba, 12, was one month old when his family discovered that their firstborn son was sick. He was constantly vomiting, and doctors soon told the family he needed regular blood transfusions and medications to stay alive. “He just kept vomiting and vomiting – a few weeks after he was born,” his mother, Zahrat Al Jedba, 31, told The National.
By the time war broke out on October 7, he needed up to eight immunity-boosting tablets a day, his family said. Soon after, the family was no longer able to obtain the medication he relied on. It was the lowest point they had faced.
“This was a nightmare. We were worrying about keeping not only Oday alive but the entire family,” said Ms Al Jedba. A few weeks later, they received news that Oday would be treated in the UAE and was set to board one of the first evacuation flights. “We sent him on the flight not sure if we would ever see him again,” said his father, Khaled Al Jedba, 38.
At the time, only his grandmother was allowed to accompany him. Oday and his grandmother arrived in Abu Dhabi in December 2023, and he remained in hospital for nearly a year before receiving the life-saving treatment he needed.
The boy was diagnosed with Dada-2 deficiency, a rare genetic disorder that involves inflammation of the body's tissues, especially the tissues that make up the blood vessels, which can lead to damage to the vital organs and systems, resulting in disability and even death.
Fighting the odds
Doctors at Yas Clinic in Abu Dhabi determined he needed a bone marrow transplant but his grandmother was not a match. For almost a year, the UAE worked tirelessly to bring the rest of his family to Abu Dhabi to determine whether his parents or one of his three sisters might provide a match.
“This was an emotional rollercoaster,” Mr Al Jedba said. “Were we going to survive in Gaza amid all the bombing, or would Oday stay alive until we arrived? There was not a night that we slept in peace,” he said.
On October 25, almost a year later, his mother and three sisters managed to come to the UAE. A few months later, their father joined them. The family was immediately tested to identify a suitable donor. Oday’s 15-year-old sister, Doaa, was found to be a match.
“The day we all arrived to the UAE, I bent down to the floor to kiss the ground and thank God,” said Mr Al Jedba. “We survived. We all survived.”
On March 10, Oday received his bone marrow transplant at Yas Clinic in Abu Dhabi. After almost two years of being in and out of hospital, he is now recovering at Emirates Humanitarian City, which is currently sheltering around 2,600 Gazans.
“I am so grateful that I am with my family. It is so hard and lonely at the hospital without them,” the 12-year-old said. “I didn’t think I would see my mother and family again.”
UAE offering help to those in need
The operation is one of many examples of how the UAE continues to support the people of Gaza since war broke out in the enclave.
Launched in 2023 by President Sheikh Mohamed, Operation Gallant Knight 3 has been taking place in collaboration with the Emirates Red Crescent and humanitarian and charitable institutions in the UAE, to deliver aid to those most in need.
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Key figures in the life of the fort
Sheikh Dhiyab bin Isa (ruled 1761-1793) Built Qasr Al Hosn as a watchtower to guard over the only freshwater well on Abu Dhabi island.
Sheikh Shakhbut bin Dhiyab (ruled 1793-1816) Expanded the tower into a small fort and transferred his ruling place of residence from Liwa Oasis to the fort on the island.
Sheikh Tahnoon bin Shakhbut (ruled 1818-1833) Expanded Qasr Al Hosn further as Abu Dhabi grew from a small village of palm huts to a town of more than 5,000 inhabitants.
Sheikh Khalifa bin Shakhbut (ruled 1833-1845) Repaired and fortified the fort.
Sheikh Saeed bin Tahnoon (ruled 1845-1855) Turned Qasr Al Hosn into a strong two-storied structure.
Sheikh Zayed bin Khalifa (ruled 1855-1909) Expanded Qasr Al Hosn further to reflect the emirate's increasing prominence.
Sheikh Shakhbut bin Sultan (ruled 1928-1966) Renovated and enlarged Qasr Al Hosn, adding a decorative arch and two new villas.
Sheikh Zayed bin Sultan (ruled 1966-2004) Moved the royal residence to Al Manhal palace and kept his diwan at Qasr Al Hosn.
Sources: Jayanti Maitra, www.adach.ae
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Started: July 2016
Founders: Mukesh Bansal and Ankit Nagori
Based: Bangalore, India
Sector: Health & wellness
Size: 500 employees
Investment: $250 million
Investors: Accel, Oaktree Capital (US); Chiratae Ventures, Epiq Capital, Innoven Capital, Kalaari Capital, Kotak Mahindra Bank, Piramal Group’s Anand Piramal, Pratithi Investment Trust, Ratan Tata (India); and Unilever Ventures (Unilever’s global venture capital arm)
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Profession: Senior sports presenter and producer
Marital status: Single
Favourite book: Al Nabi by Jibran Khalil Jibran
Favourite food: Italian and Lebanese food
Favourite football player: Cristiano Ronaldo
Languages: Arabic, French, English, Portuguese and some Spanish
Website: www.liliane-tannoury.com
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Mubadala World Tennis Championship 2018 schedule
Thursday December 27
Men's quarter-finals
Kevin Anderson v Hyeon Chung 4pm
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Serena Williams v Venus Williams 8pm
Friday December 28
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Al Amerat, Muscat
Results
Oman beat UAE by five wickets
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UAE beat Namibia by eight wickets
Fixtures
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Analysis
Maros Sefcovic is juggling multiple international trade agreement files, but his message was clear when he spoke to The National on Wednesday.
The EU-UAE bilateral trade deal will be finalised soon, he said. It is in everyone’s interests to do so. Both sides want to move quickly and are in alignment. He said the UAE is a very important partner for the EU. It’s full speed ahead - and with some lofty ambitions - on the road to a free trade agreement.
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1. Chris Jones-Griffiths 2. Gio Fourie 3. Craig Nutt 4. Daniel Perry 5. Isaac Porter 6. Matt Mills 7. Hamish Anderson 8. Jaen Botes 9. Barry Dwyer 10. Luke Stevenson (captain) 11. Sean Carey 12. Andrew Powell 13. Saki Naisau 14. Thinus Steyn 15. Matt Richards
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16. Lukas Waddington 17. Murray Reason 18. Ahmed Moosa 19. Stephen Ferguson 20. Sean Stevens 21. Ed Armitage 22. Kini Natuna 23. Majid Al Balooshi
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When: The one-off Test starts on Friday, May 11
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TV: The match will be broadcast on OSN Sports Cricket HD. Subscribers to the channel can also stream the action live on OSN Play.
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Dr Afridi's warning signs of digital addiction
Spending an excessive amount of time on the phone.
Neglecting personal, social, or academic responsibilities.
Losing interest in other activities or hobbies that were once enjoyed.
Having withdrawal symptoms like feeling anxious, restless, or upset when the technology is not available.
Experiencing sleep disturbances or changes in sleep patterns.
What are the guidelines?
Under 18 months: Avoid screen time altogether, except for video chatting with family.
Aged 18-24 months: If screens are introduced, it should be high-quality content watched with a caregiver to help the child understand what they are seeing.
Aged 2-5 years: Limit to one-hour per day of high-quality programming, with co-viewing whenever possible.
Aged 6-12 years: Set consistent limits on screen time to ensure it does not interfere with sleep, physical activity, or social interactions.
Teenagers: Encourage a balanced approach – screens should not replace sleep, exercise, or face-to-face socialisation.
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The internal combustion engine is facing a watershed moment – major manufacturer Volvo is to stop producing petroleum-powered vehicles by 2021 and countries in Europe, including the UK, have vowed to ban their sale before 2040. The National takes a look at the story of one of the most successful technologies of the last 100 years and how it has impacted life in the UAE.
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